By Jaqui Hewitt-Taylor
Targeting the genuine lifestyles studies of youngsters and their households, this ebook presents useful perception into residing with advanced and carrying on with health and wellbeing needs.The writer highlights the significance of seeing every one baby as anyone, with an identical rights and desires as the other individual, instead of defining them by means of their health and wellbeing . The ebook comprises case stories to demonstrate the reviews of youngsters, mom and dad, siblings and prolonged households, in addition to execs in well-being and social care. those own debts talk about either the demanding situations and the rewards linked to taking care of a toddler with advanced wishes. the writer additionally presents an summary of the help that is to be had in healthcare and schooling platforms and makes strategies for the future.Anyone who's liable for assisting teenagers with advanced and carrying on with wellbeing and fitness wishes will reap the benefits of studying this e-book.
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Extra info for Children with Complex and Continuing Health Needs: The Experiences of Children, Families and Care Staff
She describes a recent occasion when he went with Stan and some other lads to play football. Although Mitchell could not join in the activity itself, he loved the atmosphere and being a part of the social interactions. Children being able to choose the activities which they enjoy is also important. ’ 34 BEING A CHILD OR YOUNG PERSON WITH COMPLEX NEEDS However, in many cases it is much harder for children who have complex and continuing health needs to experience opportunities for play, recreation and enjoyable activities which their peers take for granted.
Alison describes how, because of its rarity, many staff do not fully understand the implications of Peter’s condition in the way that she does: ‘When he has been very very poorly and they say: “No, he’s fine,” it’s getting them to try to understand what his condition means. ” It’s things like that. ’ The expert knowledge and skills that parents develop, and the health-related roles which they take on can, nonetheless, detract from their expected role as a parent. One aspect of this can be them having to perform unpleasant procedures for their child, which contrasts with the expected nurturing and protecting role of a parent.
However, even when a child is able to access high-quality education, they may often have to make a much greater effort to achieve what their peers achieve at school or college. This may be because of health-related issues, including missing school because of ill health, ill health affecting their ability to concentrate on learning, and health-related appointments causing them to miss school and having to find the time to catch up with their peers. Cheryl explains that Zak struggles to keep up with his peers at school because of ‘all the little things, like he misses so much school for hospital appointments’.